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Month: December 2019

Life strategies of people with deafblindness due to Usher syndrome type 2a – A qualitative study

Posted in Technology & Research

In the month of August 2019 a very interesting and important research study on the life strategies of people with Usher Syndrome type 2A was published in Sweden. There are no previous studies of this type.
On the one hand this shows greater attention to this disease, on the other it certifies its rarity. Not least shows how patients with this disease have been left alone, without knowing exactly how to cope with the consequences of a double sensory limitation.
These strategies, therefore, are totally individual, and the result of personal determination and strength.
The conclusions are nothing short of exciting.
It is shown that patients with Usher Syndrome type 2A want to take control of their lives, engage in a process of striving to live an active life in accordance with their own values, in other words, to be at the helm of their own lives.