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Author: Cane Foundation

I am rare. Actually unique. Rare Disease Day

Posted in Technology & Research

“When I found out I was stunned. It was clear that it was #rare but I didn’t think so rare. After a while I began to realize that you are rare, but there are also many rare diseases. The cool thing is that at a certain point you start to feel you #sexy, in the American sense of the term. Doctors look at you curiously, the specialists can’t wait to explore under your eye. You laugh, a smile for every time you cried. I have a big karmic debt in smiles. At the moment I have cried more than I smiled. I think I will smile today today, tomorrow, the day after tomorrow. I hope I will not stop. #ifeelsexy ”