Stargardt disease affects one in ten thousand people and I am that one… Hi, I’m Elise and I have lived every day for the past ten years of my life with a life-altering rare genetic eye disease. I guarantee that if you were to ask somebody you know if they know what Stardgarts is, they wouldn’t have a single clue. I also guarantee that if you were to meet me, not knowing a single thing about me, you would be entirely oblivious to the fact that I have a visual impairment (VI). It’s essentially what’s called a hidden disability, which often causes people to easily dismiss it and be completely unaware of how much it affects pretty much every single thing I do.
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