Category: Technology & Research

The dust on the shoes.
I just pass a finger on the hard leather. I should put the cream on to soften it. And I should put it on my face, to soften the skin burned by the sun and above all by the wind. But I don’t want to remove from the shoes and from the face the signs of the trek just ended.
I want hold on the illusion to depart soon again. Tomorrow. Right away. I want this wind to take me back to flight.Tomorrow. Right away. I want this wind to take me back to fly.

This article aims to collect all the cures for retinitis pigmentosa found on the internet in a single list.
A way to do you a favor and avoid browsing through a myriad of websites.
If you ended on this webpage you are probably looking for a cure for yourself or for a friend of yours, or for a close relative. In any case directly or indirectly you are involved with retinitis pigmentosa.

Original text here

Glaucoma is one of these age-related eye diseases that has no early symptoms, which is why it is called the silent thief of sight. It is actually a group of diseases that can damage the eye’s optic nerve and result in vision loss and blindness. Open-angle glaucoma is the most common form disease.

(transalted from Italian by Sophia Boccard)

This text is taken from Usher Syndrome Coalition website, where you can find more information about genetics for Usher syndrome

Last weekend we kicked off a new NoisyVision project, thanks to Airbnb Social Impact Experiences. This is a new way to promote causes, build awareness, and raise funds. Social impact experiences give Airbnb guests a chance to learn more about our mission and cause — and have some fun along the way.

We are pleased to share with you the video, transcripts, slides and summaries of the 2018 International Symposium on Usher Syndrome in Mainz, Germany. More than 250 people from around the world attended the multi-day gathering in-person, and more than 150 joined the Patient Symposium via livestream, making it the single largest event ever held for the Usher syndrome community.

It’s Monday, the first Monday of November. The monumental entrance of the Scuola Holden welcomes us majestically under the light rain that accompanies the reawakening of the city of Turin, after a weekend full of cultural and musical initiatives. The building Headquartered earlier the Royal Powder Factory and Nitri Refinery and then the Cavalli Barracks, since 2013 it houses the storytelling school founded in 1994 by the writer Alessandro Baricco.
Warehouses and workshops have left space for small classrooms with colored walls, which overlook the three courtyards of the complex. There are no desks, but each room has a single oval table around which teachers and students sit. Our classroom has yellow walls. Not even on purpose, the color of #YellowTheWorld welcomes the project that will bring together students of the College Brand New, dedicated to business communication, with NoisyVision ONLUS and vEyes.
The first stage of this initiative is a presentation on the Usher Syndrome, a genetic disease that determines the coexistence of retinitis pigmentosa, deafness and, sometimes, problems of balance.

NoisyVision has been promoting the #YellowTheWorld campaign for several years, to paint the world Yellow. We are sure that a more yellow world would be not only more visible to people with low vision, but also more beautiful, lively, joyful and positive.
However, as we often say, it is a matter of contrasts, of juxtaposition. The yellow would have no functional value if it were not opposed to other colors, which enhance the light.
Nadia transposes this chromatic approach to herself, to the way of reading the different aspects of the personality. In the autumn palette, yellow and blue contend for mood and time.